Surveys
We conduct various surveys to gather data and insights on a variety of Pediatric Neurosurgical topics. In addition, we can also endorse surveys conducted by our members and support in the distribution through ISPN channels.
In an effort to ensure the quality of surveys, avoid repetition, and ensure the projects have direct relevancy to our membership, a framework has been established to evaluate survey requests.
To have your survey endorsed by the ISPN, please review the ISPN Standard Operating procedure on survey endorsement:
When we have any open surveys – You can find the respective information below.
Absence of flow void following prior ETV
- Principal Investigators (PIs): Jonathan Roth and Jehuda Soleman
- Collaboration: Joint project with the International Federation of Neuroendoscopy (IFNE)
- Description: This survey examines the absence of flow void in patients who have undergone Endoscopic Third Ventriculostomy (ETV).
Following a technically successful ETV, sagittal MRI scans (T2, flow studies) are expected to demonstrate a flow void (F/V) signal through the stoma.
In an asymptomatic patient with no flow on postop MRI, the question remains if the patient is at risk for developing symptoms, including sudden death, and therefore should the patient be “prophylactically” treated (redo ETV vs. a shunt).
This international survey focuses on the treatment options in an asymptomatic patient, following a technically successful ETV in the absence of a F/V on sagittal T2 sequences on follow up scans.
In this category we will include: 1) Patients with no F/V following the ETV, 2) Patients with disappearance of a prior F/V.
ISPN Pediatric Neuro-Oncology Committee – Survey
We have been asked by the ISPN President to set up a global pediatric neuro-oncology group to facilitate sharing knowledge, expertise, and experience. Recent developments in the care of brain tumors in children have led to new and difficult challenges for neurosurgeons. Within our ISPN community we have an opportunity to come together and make a difference by disseminating best practice, facilitating international networking, and supporting multidisciplinary care.
This is a brief survey to collect some basic information on brain tumor services for children. It should take no longer than 10 to 15 minutes to complete.
Do not hesitate to contact us if you have any questions on the following email addresses:
Kristian Aquilina
Paediatric Neurosurgeon, Great Ormond Street Hospital, London, UK
Adriana Fonseca Sheridan
Attending Neuro-Oncologist, Children’s National Hospital, Washington DC, United States
ISPN International Survey on Decision-Making Process in Children with Severe TBI and Bilateral Mydriasis
Traumatic brain injury (TBI) is a significant global health issue, with an estimated 27 to 60 million new cases annually and 55 million people living with TBI-related disability. Pediatric TBI differs from adult TBI in terms of mechanism, pathophysiology, and outcome.
Despite the lack of uniformity in TBI definitions, severe TBI is routinely defined as a Glasgow Coma Scale (GCS) score < 9 in the acute setting. Although GCS was originally introduced for adults, it is now commonly used to also describe TBI severity in children.
Functional outcomes of severe pediatric TBI can be devastating, lead to chronic vegetative state, and constitute a major psychological and financial burden to children, families and society.
This is an international survey including demonstrative cases, which should take no longer than 10 to 15 minutes to complete.
Do not hesitate to contact us if you have any questions on the following email address:
Dr Andrea Bartoli
Hôpitaux Universitaires Genève, Switzerland
Complex Scenarios in Simple Craniosynostosis
- Principal Investigator (PI): Federico Di Rocco
- Description: We would like to have your opinion on the subject: Complex Scenarios in Simple Craniosynostosis.
When other conditions are associated with monosuture craniosynostosis, there is often no consensus regarding the complementary studies to be performed or the potential surgical management.
For this reason, we kindly ask you to participate in our survey, which presents two major clinical scenarios along with some variations in findings for each.
We greatly appreciate the time you will dedicate to this. All information provided will be treated with strict confidentiality.
