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Registries

Our registries collect and maintain data on specific pediatric neurosurgical conditions to support research and improve patient outcomes.

Treatment of Posthemmoragic HYdrocephalus – TROPHY Registry

  • Principal Investigator (PI): Ulrich-Wilhelm Thomale
  • Description: Intraventricular hemorrhage in premature babies and newborns is causing a relevant rate of long term developmental morbidity. Possible causative factors are primary brain damage, blood degradation, hydrocephalus and treatment-associated complications as risk factors. The neurosurgical treatment strategy in the early phase of posthemorrhagic hydrocephalus remains a challenge due to the patient’s low body weight and protein polluted CSF. A consistent guideline of surgical treatment is still missing.
    Under the auspices of the International Federation of Neuroendoscopy (IFNE) the TReatment Of Posthemmoragic HYdrocephalus – TROPHY Registry is designed to acquire a prospective data collection on an international basis for post-hemorrhagic hydrocephalus in neonates. A synchronized data set for different possible treatment strategies such as external ventricular drainage (EVD), ventricular access device (VAD), ventricular subgaleal shunt (VSGS), and neuroendoscopic lavage (NEL) is collected to investigate possible complications, shunt dependency and long term developmental outcome.
  • Link: https://trophy-registry.org/

Recent news See all

ISPN 10 October Webinar – ISPN Pediatric Neurosurgery Case Conference: Pearls and Traps
October 1 2025

ISPN 10 October Webinar – ISPN Pediatric Neurosurgery Case Conference: Pearls and Traps

ISPN Business Meeting 2025 – Wednesday 29 October
September 30 2025

ISPN Business Meeting 2025 – Wednesday 29 October

ISPN 2025 – Early bird registration deadline fast approaching!
August 29 2025

ISPN 2025 – Early bird registration deadline fast approaching!

ISPN 12 September Webinar – ISPN Pediatric Neurosurgery Case Conference: Pearls and Traps
August 22 2025

ISPN 12 September Webinar – ISPN Pediatric Neurosurgery Case Conference: Pearls and Traps

Upcoming events See all

EANS2025 Vienna
Vienna, Austria
October 5 - October 9, 2025

EANS2025 Vienna

ISPN Webinar – ISPN Pediatric Neurosurgery Case Conference: Pearls and Traps
Online
October 10 2025

ISPN Webinar – ISPN Pediatric Neurosurgery Case Conference: Pearls and Traps

Congress of Neurological Surgeons – Annual Meeting
Los Angeles, CA, USA
October 11 - October 15, 2025

Congress of Neurological Surgeons – Annual Meeting

Meeting of the European Association of Neuro-Oncology
Prague, Czechia
October 16 - October 19, 2025

Meeting of the European Association of Neuro-Oncology

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